I was covering for my partner over the weekend and saw his
patient with end stage liver disease, a consequence of decades of alcohol
abuse. He was one of the most deeply
jaundiced individuals I have ever seen.
His mental status was still preserved.
He could converse and responded appropriately to my routine inquiries,
although he was somewhat sluggish in his thinking. It’s amazing that even after the majority of
a liver is dead, that a person can still live.
The Liver - Alcohol's Enemy
When I do my hospital rounds, it is rare that one of my
patients is not suffering some complication of chronic alcoholism. In the hospital, the disease is
rampant. In my office, this addiction is
much more easily disguised. I know that
many of the high functioning alcoholics whom I see there have kept their
addiction a secret. Some lie and others
deny.
There was a dispute with regard to the jaundiced patient
referenced above. There was no
disagreement among the medical professionals on treatment options. At this point, there was no medical treatment
to offer beyond his current medications.
A palliative care specialist advised that hospice care was the most
appropriate option.
The physicians and nurses concurred.
Why didn’t it happen?
The patient’s wife, who lived out of town, insisted that all
medical measures be pursued. Hospice
care was a non-starter. While the patient and his wife were separated,
she was still the legal spouse and next of kin.
The patient had not prepared a living will. It was not felt that the patient possessed
sufficient mental capacity to make this profound medical decision. So, the wife's view prevailed.
My task was easy as I was only responsible for his gastro
care over the weekend. But, there was a
huge ethical task that demanded to be confronted. Physicians were continuing to provide futile
care because a wife demanded it. Such
care, in my view, is unethical and need not be provided, despite the insistence of a family member.
Physicians are under no professional obligation to provide
care that is futile, oris extremely unlikely to offer benefit, even if patients
and families demand it. The fact that a
third party is usually paying for this treatment only deepens the ethical infraction. Physicians should not feel obligated to
accede to futile care requests, or feel that they need a court order to protect
them against such requests. In my
experience, surgeons are more comfortable than are medical specialists and
internists in declining to provide care that won’t help. I have often heard surgeons tell patients and
their families that an operation simply won’t help and shouldn’t be done. For some reason, this issue seems to be
murkier for non-surgeons.
Of course, physicians must be sensitive when discussing
these issues with patients and families who understandably want anything and
everything done to save their loved one.
But, giving care that won’t work is wrong.
Over the weekend that I saw this patient, I was not in a
position to set the patient free. It
seemed surreal that everyone on the case knew the right thing to do, but none
of us were doing it.
Very wise words indeed. Great post.
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